This community is for people with multiple myeloma. Friends, family members and others with an interest in the disease are also encouraged to join the discussion.
Moderators
Donna Karan and her Urban Zen Initiative
weSPARKRefuge in the StormAttacking Cancer Where It Counts-
redwards joined the group Multiple Myeloma 2 months ago · View
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fluffycancergirl posted an update in the group Multiple-Myeloma: 2 months, 1 week ago · View
ronnie, did you use your cells or donor cells?
I had an ast out-patient in 2006. I went 2 1/2 years w/o chemo after that. I started on rev/dex in September 09.
Diagnosed at 36
Which source of cells you use typically depends on your age, the activity of your myeloma, and the availabliity of a donor. Most get an autologous stem cell transplant which has become quite safe and is often performed on an outpatient basis as Ronnie mentioned below
C
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charles posted on the forum topic Stem Cell Transplant in the group Multiple-Myeloma: 3 months, 4 weeks ago · View
Wow-thats great so you are almost 10 years out from transplant for Myeloma. Any long term problems? How long were you in the hospital? Did doctors use marrow or blood stem cells? Thanks for sharing
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ronnie posted on the forum topic Stem Cell Transplant in the group Multiple-Myeloma: 3 months, 4 weeks ago · View
I had a stem cell transplant in 2001. I have Multiple Myeloma. I have been in remission since 2001. I’ve take no medicine and stopped Aredia over 5 years ago. I am 58 and doing great. Now the stem cell transplant are easier. They are usually out-patient and they don’t use as much chemo. I’ll [...]
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charles started the forum topic Stem Cell Transplant in the group Multiple-Myeloma: 3 months, 4 weeks ago · View
If anyone has had a stem cell transplant as part of their treatment for Multiple Myeloma could they share their experience?
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gldngirl31 posted an update in the group Multiple-Myeloma: 4 months ago · View
Help….I’ve just been diagnosed with Multiple Myeloma, and I’m trying to get onto the Revlimid pills, but, I just felt a lump in my left breast, which I had a mastectomy done in 2008 and went thru chemo and radiation all thru 2009. My question is, if this lump turns out to be cancerous, would they put me on two separate chemo medications? I’m freaking out and of course it’s the weekend and I cannot even get in to see my doctor until Tuesday.
depending on its location and size a new lump may be benign or a local recurrence which could require no treatment or surgery alone. Sounds like you identifeid it early which could be good news
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charles joined the group Multiple-Myeloma 4 months, 2 weeks ago · View
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Check out this informative article by Jane Brody of the New York Times on advances in the treatment of Multiple Myeloma. http://www.nytimes.com/2010/04/13/health/13brod.html
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cmwilson0624 joined the group Myeloma 4 months, 3 weeks ago · View
Welcome to cancer connect myeloma community; i am one of the moderators; are there any topics you would like to see discussed, questions explored and resources we can help you with?
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cancerconnect joined the group Myeloma 4 months, 4 weeks ago · View
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