Lung Cancer home page
Welcome guest
Group avatar

This community is for people with lung cancer. Friends, family members and others with an interest in the disease are also encouraged to join the discussion.

Moderators
  • Avatar Image
  • wendyshelton posted an update in the group Lung Cancer:   2 weeks ago · View

    my mom has been 3 1/2 years with sclc… orig. diagnosed in the lower left lung only.. had the chemo and radiation.. and then the cranial brain radiation for preventative purposes.
    Did very well with initial treatment.
    A year and a half later – found a met to her upper left adrenal gland.
    about to join a clinical trial when thru the pre-test they found a 3mm lesion in her brain.
    Today they are doing a gamma knife procedure that Dr. Prassad feels will be easy and effective. Then 4 more weeks and we are hoping she’ll be able to go back to start the clinical trial.

    anyone out there have any of these treatments? mostly the new one for us is the Gamma knife…

  • cinderella posted an update in the group Lung Cancer:   4 weeks ago · View

    Has anyone with 3A NSCLC gone through chemo followed by surgery followed by radiation?

    • Avatar Image
      miwawrka · 4 weeks ago

      hi cinderella, my mum had her surgery prior to the chemo and radiation, we got so startled, we just wished to get the beast out of her body at all cost, even risking her left lung pneumonectomy…her surgeon said that if we had come a month later, they would not operate and when they discovered 3 lymph nodes involvement, the protocol says clearly – no operation before neoadjuvant therapy…so it was a bare risk anyway…however, they said, 3 months and now it´s 1.5 yr and she´s still down here, her markers dropped from 65 to 1.3 after starting to take Tarceva…none of the treatments, chemo or radiation could not stop the activity until she started to take Tarceva…if she took it right away, we might not have risk the spreading of the cancer to her right lung and a met to L4 vertebrae…but all these are just our speculations, nobody knows what if…take care and don´t worry, stats and docs don´t know what´s the plan with you down here…enjoy every minute of your life, don´t get frustrated, sending a lot of positive vibes and strength to defeat everything that deprive you of your happiness.

  • miwawrka posted an update in the group Lung Cancer:   4 weeks ago · View

    I have found some useful articles on this topic, as for my mum, she received chemotherapy along with radiation therapy, so it´s difficult for us to differentiate between the two treatments which caused which side effect, but we experienced blood clots – embolism due to the surgery, hair loss, lack of appetite, tiredness, weakness, nausea and vomiting, diarrhoea and skin and mouth / throat dryness cramps in legs and tingling feeling in toes…:but everyone is different…

    http://www.radiologyinfo.org/en/info.cfm?pg=lungcancer
    http://www.rmg.md/cancers/lung/side-effects.htm
    http://lungcancer.about.com/od/treatmentoflungcancer/a/radsideeffects.htm
    http://lungcancer.about.com/od/treatmentoflungcancer/a/manageradeffect.htm
    http://www.cancercompass.com/lung-cancer-information/side-effects.htm

  • charles started the forum topic Radiation Therapy for Lung Cancer in the group Lung Cancer:   4 weeks, 1 day ago · View

    What are the side effects of Radiation for the treatment of lung cancer?

  • miwawrka posted on the forum topic I’m excited to learn about how tarceva may be of benefit in the group Lung Cancer:   1 month, 1 week ago · View

    thank you mesoccer, for the warm-hearted encouragement and the kind words, actually, mum takes 150mg tarceva in the evening, at 9pm exactly before going to bed, she develops numb feet from time to time and stomachaches, but as you said, after some time we hope to diminish, get used to and barely notice them…I will [...]

  • mesoccer posted on the forum topic I’m excited to learn about how tarceva may be of benefit in the group Lung Cancer:   1 month, 1 week ago · View

    Thank You Miwawrka. How is u Mum doing? tell her to hang in there. Wow and Yahoo. that is great news her numbers came down. I do remember I had mor Tarceva side effects when I took in the morning. Try changing to pm. Made big difference for me. I try 1 hr before dinner [...]

  • miwawrka posted on the forum topic How did you learn you had lung cancer? in the group Lung Cancer:   1 month, 2 weeks ago · View

    Miracles happen and you are one, blessedintn…God bless the radiologist and the surgery…May the Lord keep you NED forever ;) Take care.

  • blessedintn posted on the forum topic How did you learn you had lung cancer? in the group Lung Cancer:   1 month, 2 weeks ago · View

    I was suffering from an antibiotic resistent sinus infection with wheezing. A chest x-ray was ordered in February 2009 and a very vigilant radiologist found a very small questionable lesion in my right upper lung. I was later diagnosed as non-small cell, adenocarcinoma. By the grace of God, it was removed as a Stage 1A [...]

  • miwawrka posted on the forum topic I’m excited to learn about how tarceva may be of benefit in the group Lung Cancer:   1 month, 2 weeks ago · View

    Welcome to our community, mesoccer…your deal with LC resembles much the one, my mum´s undergoing right now, so we would like to thank you so much for sharing your superb news and results with tarceva…your tips to deter the rash are greatly appreciated…stay with us and keep us posted.

  • charles posted on the forum topic I’m excited to learn about how tarceva may be of benefit in the group Lung Cancer:   1 month, 2 weeks ago · View

    Thanks for sharing your experience; its nice to hear when things are going really well. Welcome to the community!

  • mesoccer posted on the forum topic I’m excited to learn about how tarceva may be of benefit in the group Lung Cancer:   1 month, 2 weeks ago · View

    Tarceva is Wonderful, I have been on Tarceva 150mg (which is the only strength it comes in) since Sept 2004. Stage 4 NSCLC. Had left Lung removed 9/2004 Treatment with Chemo Carboplatin and Taxol weekly for 16 weeks. Then Had Right middle lobe removed and Right upper lobe wedge resection. Not much air but I [...]

  • miwawrka posted on the forum topic I’m excited to learn about how tarceva may be of benefit in the group Lung Cancer:   1 month, 3 weeks ago · View

    great news, mum´s markers yesterday´s result after two months treatment!!! was unbelievable!!! 3.4 from the last 14 and the before treatment 64…to us Tarceva #1 at the moment…side effects, well, worth the try :)

  • shelleyb2154 started the forum topic I’m excited to learn about how tarceva may be of benefit in the group Lung Cancer:   1 month, 3 weeks ago · View

    Like Burgundy, I’m excited to learn about how tarceva may be of benefit to me now or later. I am in remission after chemo and radiation together for Stage III-A adenocarcinoma (NSCLC). Of course, I want to make this remission last as long as possible. I just joined this site, and so far, I’m very [...]

  • mikie started the forum topic Novel treatments for non-small cell lung cancer. in the group Lung Cancer:   1 month, 3 weeks ago · View

    I would like to discuss treatments for non-small cell lung cancer. I have been on treatment for 1 yr. and 4 mos. now. Had Alimpta 7 months ago and then went on just Avastin. Ct scan just showed an increase in cancer cells so now I am going back on Alimpta this week. Any comments [...]

  • pokydot posted an update in the group Lung Cancer:   2 months ago · View

    Just listen for now

    • Avatar Image
      miwawrka · 2 months ago

      welcome to our community, pokydot…

  • lat2 posted an update in the group Lung Cancer:   2 months ago · View

    all so new to us our mom was just dx with small cell lung cancer stage 4 and has spread to liver and other side of lung.we go thur. to get a port put in then on fri.a pet scan done.early next week they will start chemo.they are going to use Cisplatin/Etoposide,from what i read the side effects are hard.they didnt really tell us how long she has to live i was just looking for any encouragement about this dx. in my hard i think is bad.its been a long couple of days! thank you for your help.

    • Avatar Image
      charles · 2 months ago

      I am sure it has been a tough couple of days. Chemo can be tough, but not as bad as it used to be; there are many ways to prevent or reduce the side effects and the key thing is to make sure you tell your doctor whatever side effects you are experiencing; too many patients feel they cant let their doctor know. here is some general info on small cell http://news.cancerconnect.com/small-cell-lung-cancer-overview/

      • Avatar Image
        miwawrka · 2 months ago

        hi lat2, when my mum was dx with NSCLC stage IIIA, after left lung pneumonectomy, the surgeon told us she had 3 months of life…now it´s over 1 yr. and a half and she is still with us, enjoying every day to the fullest and we feel it the same…we faced plenty of bad news since then like a met to the spine, mets in her remained right lung, but we still do hope, we stopped crying, since our mum needs us to support her and not to worry, we learned to live with the cancer and you will do too, there are plenty of good drugs now, so I´m sure you should forget about thinking how long yet,..we have a friend of ours who has the same dx as your mum and she´s just celebrated her 5th anniversary!!! yes, she has had her ups and downs, but there´s nothing in the whole world to stop her from enjoying her family, friends, work, things she likes etc…enjoy every little moments, give her strength and love and see the miracles in her way to happen…psychical comfort is now of higher importance than the physical, tell her about the many survivors, you can meet them at inspire.com as well…take care, you all remain in our thoughts as we are now a big family getting through a hell but finding a true family love, strength and respect

  • mikie posted an update in the group Lung Cancer:   2 months, 1 week ago · View

    Hi miwawrka, thank you for the update on your mum. Please let me know how she is doing on the Tarceva? I have NSCLC and have been on Caboplatin, Alimpta and Avastin. 6 treatments on Carbo then 7 treatments of Alimpta. Avastin the whole time, now back on the Alimpta. This has been going on for 1 yr. & 6mo. I have had 4 thoracentesis’s which is where they find the CA cells. I have 5 more treatments of Alimpta then I don’t know what will happen. Dr. wants me to go on the Tarceva but I don’t think I can handle all of the side effects and I don’t know what else is out there for me? Now I’m coughing and short of breath for over a month now. I will see Dr. next Friday for a treatment and probably another Thoracentesis. Please let me know what’s going on with your Mum and how she is tolerating the Tarceva. How long has she been on it now? Looking forward to hearing from you. Thanks again.

    • Avatar Image
      miwawrka · 2 months ago

      hi mikie, my mum´s just finished the second month on Tarceva, the side effects are a hell to go through but we still manage…the more we waited with the ineffective chemo, the worst…she has all the side effects one can imagine, loss of appetite, stomachaches, nose and chin rash, diarrhoea – she takes tablets to fight it and then it´s okay again…she has curly eyelashes, strange hair quality, thicker and dryer, mouth sores, rough nails, however, since the markers dropped from 65 to 14 at her last check-up we keep going and don´t despair…yesterday she had her MRI done, at first sight they told us there was no evidence of growth or changes, but we need to wait until a thorough examination of the scans is complete…next week we see our oncologist, she will tell us more…will keep you posted…as for the cough, mum´s started to have it again since she stopped wit the chemo and radiation, however, it might be due to the tiny spots they discovered on her now only left ”right lung” maybe the result of waiting too long and taking 6 rounds of bad chemo…mum´s been dx since January 2009, so it´s been over 1yr. & 6,5 month now like you…to tell the thruth, Tarceva works with us, so why not work with you, we don´t expect miracles as clearing out everything, but it stops what can be stopped and the side effects aren´t as harsh as you experienced with the right chemo…mum´s still going to work, prepares meals she likes, goes for walks in the garden and with our dog when the sun´s nearly down and it´s not so hot and most of all she regained back 2kgs so we stay positive…we hope it will do its job for a long time…take care and stay positive…keep us posted…mirka:)))

  • paul posted an update in the group Lung Cancer:   2 months, 1 week ago · View

    Just testing forum for a moment – please disregard

  • chriso posted an update in the group Lung Cancer:   2 months, 3 weeks ago · View

    Hi, I am a friend and advisor to a wonderful lady with metastatic lung cancer. We have heard about chemoembolization for mets to the liver and I wondered if anyone on the list had any experience. She was diagnosed in November 2008 and has radiation, whole brain radiation and various chemo cocktails but these two large mets have just been discovered.
    Thank you

    • Avatar Image
      charles · 2 months, 3 weeks ago

      I have some experience in this area; isolated liver mets can often be treated if there is no other evidence of cancer; certain cancer centers specialize in this and other liver directed therapies; what part of the country do you live in?

  • chriso joined the group Lung Cancer   2 months, 3 weeks ago · View

  • Load More