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shirleymgates posted an update in the group Chronic Myelogenous Leukemia: 1 week, 3 days ago · View
Would really like to get some input with anyone that has cmml or have a family member with this awful cancer, My sister ahs cmml,
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shirleymgates posted an update in the group Chronic Myelogenous Leukemia: 1 week, 6 days ago · View
Hello I’m new to this site but really would like to chat with someone that has CMML or have a loved one with this awful cancer. My Sister has CMML and was told she had 6 mo or less to live. I just can’t believe how they could know that. Only God knows when it’s our time. Please pray for my Sister.
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erinmoaratty joined the group Chronic Myelogenous Leukemia 3 weeks ago · View
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erinmoaratty posted on the forum topic insurance help? in the group Chronic Myelogenous Leukemia: 3 weeks ago · View
Hollygirl- I wanted to provide the same post we exchanged in Insurance Issues section in case other visitors have the same question. As stated before if I can be of further support please let me know… There are several resources available to either help with the qualified insured patients with the out of pocket cost [...]
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charles posted on the forum topic Initial Treatment for Newly Diagnosed CML in the group Chronic Myelogenous Leukemia: 4 weeks ago · View
It should be available
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charles posted on the forum topic BMT SEcond Opinion in the group Chronic Myelogenous Leukemia: 4 weeks ago · View
Yes there are other options but SCT is probablly the only curative option depending on his age. Many of the cancer centers that specialize in SCT for CML are also involved in developing the next generation of treatments; it would make alot of sense to consider getting a second opinion at a SCT center that [...]
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graydays started the forum topic BMT Second Opinion in the group Chronic Myelogenous Leukemia: 4 weeks ago · View
Hello! My brother has responded poorly to Glivic and his doctor has reccommended BMT but i was reading online about other options because this seems extreme to me. Please DM me if anyone here has experienced this issue they would be willing to share.
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graydays posted on the forum topic Initial Treatment for Newly Diagnosed CML in the group Chronic Myelogenous Leukemia: 1 month, 1 week ago · View
do you know if you need to be in a special trial or can anyone get this from their dr?
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charles posted on the forum topic insurance help? in the group Chronic Myelogenous Leukemia: 1 month, 2 weeks ago · View
@hollygirl I would like to reccomend you visit the insurance issues community which is moderated by the national patient advocate foundation. they specialize in helpind undestand what kind of assistance is available.
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hollygirl started the forum topic insurance help? in the group Chronic Myelogenous Leukemia: 1 month, 2 weeks ago · View
my best freind has CML and was told by her doctor that she needs to begin taking Gleevec but her copay after insurance is around 700 a month… this is just too much for her now so I want to research what alternatives may be available for financial assistance… can anyone help???
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teneenbob joined the group Chronic Myelogenous Leukemia 1 month, 2 weeks ago · View
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georgeassad2003 joined the group Chronic Myelogenous Leukemia 1 month, 3 weeks ago · View
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paul joined the group CML – Chronic Myelogenous Leukemia 2 months, 1 week ago · View
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charles posted on the forum topic Initial Treatment for Newly Diagnosed CML in the group CML – Chronic Myelogenous Leukemia: 2 months, 2 weeks ago · View
Another option for treatment of CML becomes available-
http://news.cancerconnect.com/tasigna-approved-for-initial-treatment-of-chronic-myeloid-leukemia/
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vickiw started the forum topic Anyone else switched from Gleevec to Sprycel (Dasatinib)? in the group CML – Chronic Myelogenous Leukemia: 2 months, 3 weeks ago · View
Good morning!
anyone else having/had problems and switched to, or are about to, Sprycel? I did with great results
How about you? -
vickiw posted on the forum topic Initial Treatment for Newly Diagnosed CML in the group CML – Chronic Myelogenous Leukemia: 2 months, 3 weeks ago · View
Amen!!! I spent 2 horrible years on Gleevec! work at first, nasty side effects, then climbing counts. Up the dose, nastier side effects, good for a while then climbing counts. One more time then total failure. Switched to Dasatinib (Sprycel) and voila!!! Nasty side effects disappear one by one and then within 10 months, PCRU [...]
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vickiw posted an update in the group CML – Chronic Myelogenous Leukemia: 2 months, 3 weeks ago · View
Hi everyone! Well, here we are. On an amazing journey of survival and medical miracles! I am 3 years down my path with a few ”bumps” along the way but still here
Would like very much to be of help to anyone who might need someone to stretch out a hand and walk the path with them for awhile. I know I am further along than many and am glad to share where I’ve been, tricks I’ve learned (like coping with side effects) and where I am now. Especially since I was 2 years on Gleevec (yuch) and now on Sprycel and finally in PCRU!!! Ok, here we go—- -
vickiw joined the group CML – Chronic Myelogenous Leukemia 2 months, 3 weeks ago · View
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chris joined the group CML – Chronic Myelogenous Leukemia 2 months, 3 weeks ago · View
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charles started the forum topic Initial Treatment for Newly Diagnosed CML in the group CML – Chronic Myelogenous Leukemia: 3 months ago · View
“The American Society of Clinical Oncology is in Chicago this week and new data on the management of cancer is being released to thousands of Doctors in attendence; there is some useful information about the use of a new drug to treat CML http://news.cancerconnect.com/sprycel-may-be-more-effective-than-gleevec-for-initial-treatment-of-cml/
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CMML is actually a ”myelodysplastic snydrome” which is quite different and treated differently than CML; here is a link to some information on CMML http://news.cancerconnect.com/myelodysplastic-syndrome-overview/ that you may find helpful. Certain cancer centers specialize in treatments for CMML and treatment options are influenced by her age. It might be helpful for her to get to one of these specialized centers; what part of the country doe she live in and how old is your sister?
C
We have set up a CMML forum in the Myelodysplastic Community and invited others to visit; join this community and you will be able to meet others with CMML over the next couple of days http://cancerconnect.com/communities/leukemia-aml-or-mds/forum/